+26
+25
Signed up: 10 years ago (11/04/04)
Last signed in: 6 months ago
Friends98 Friends
Block
agrlnamedTEX
26 year-old female from Fullerton, CA
A good friend would bail you out of jail... Your Best friend would be the one sitting next to you saying, "That was friggin awesome!!!"

"I believe in Love" - Hair

"Gather your wits and hold on fast, your mind must learn to roam..."
- The Who's Tommy

"My very life is art, and my every breath is Love.. When i speak, it is poetry" - Bri

"The greatest thing you'll ever learn is just to Love and be Loved in return."

"La Vie Boheme!!!"
Latest Post
agrlnamedTEX
A Sad AnswerFor those of you who know about my stange symptoms and those of you who don't.. *sigh* I think you all need to know the result. But before we get into the details lets catch everyones attention so they'll actually read this. I'm having brain surgey on December 10th.

For the past 6 months I haven't been able to feel half of my boy, teh whole left side. It feels like it's asleep, freezing/burning, pins and needles,tingling, itching, and an all around nussance - all the time. 24/7 it doesn't stop hurting, and I can't sleep. I have less strength in the left arm and leg and my muscles will orcasionally go dead. For 6 months (well, really a year since that is when weird things started happening) we have been going to the odctor to try and figure out what is going. I had a conductive nerve study and EMG done which came back normal. I had blood tests done including an ANA test which tests for auto imune diseses which came back extremely positive, though they don't think I have and auto imune disease. I went to a nerologist who siad she had no clue what was wrong with me and referred me for an MRI. I had my MRI done and later that day went to see a Rhematologist (to check out the autoimune thing) and by the time we got there she had the results of my MRI. That was on October 5th.

The Rhematologist told us that I have a Chari Malformation. I didn't actualluy find out what that meant until last friday when I got to see a Nerosurgeon. Basically its a malformation in my skull that I've had since birth. Parts of my brian, specifically my cerrebellum developed too small, my skull developed too small around it, and then my brain/cerebellum grew and had no place to go, so where did it go - down and out of my skull and squishing my brainstem. The cerebral also cant flow properly and is being displaced into my spine. I have fluid from my brian in my spine and thats why I can't feel my body - I say it on the MRI pictures.

I saw another Nerosurgeon on Wednesday the 21st for a second opinion. He said the only treament is surgery, also that is is 100% sucessful, in that it may take more than one surgery but it will be fixed. He noticed that I've lost certain reflexs and that I've visibly lost muscle mass in my left hand and most likely other parts of my body as well. He said I could die in 10 yrs if it wasn't treated, and if it wasn't treated quickly I could lose more muscle mass and strength, become paralyzed, and lose the ability to swallow.

I... I don't know what to say anymore about this right now. i just thought people should know. As of right now I'm having surgery on Dec 10th but it may change. so, please keep me in your prayers :-)
7 years ago  |  Comments (6)  |  + 1 Ditto
Awards
Staff Awards
Milestones   [ Compare ]
The Goods
Name Bri
Occupation Theatre Designer + Technician
Birthday January 21st, 1988
Interests I am very involved in my Youth Group Theater and Venturing (co-ed extreme boyscouts.) I'm a strong Christian straight edge and love music and art. I'm obsessed with Batman and The Who�39;s ";Tommy" and I go rockclimbing and Snowboarding every chance i get and i love swing dancing. I have a green Jeep Sahara and a giant black fluffy dog named Indiana.
Gamertag
AGRLNAMEDTEX'S...
Music My favorite band of all time is THE WHO!!!! I am obsessed with classic rock i also like punk rock ska and lots of other things. Some of my fav bands are The Cold War Kids Flogging Molly Cheap Trick Boston AC/DC Aerosmith Yellow Card Green Day Big and Rich! and Suburban Legends.
Movies Moulin Rouge Stardust RENT Top Gun Hair The Blues Brothers LOTR The Princess Bride RHPS Hair The Phantom of the Opera Pirates of the Caribbean; all Indiana Jones Little Miss Sunshine and Star Wars
TV Shows That 70's Show Boy Meets World and Gilligan's Island. And that new cartoon Foster's Home for Imaginary Friends is starting to make me watch it all the time.
Books The Bohemian Manifesto The Mists of Avalon Wicked A Wrinkle in Time To Kill a Mockingbird all LOTR and all Harry Potter. And dude the Bible!